Skip to main content

Day 18 - prayer


 A few housekeeping things - I often write in the evenings and I think I ramble on sometimes from tiredness and poor focus. Second, I want to tell a cohesive story about Jack’s life but I tend to intertwine it with our current everyday life. Sorry if that means it comes out in choppy or scattered story telling. 

I have struggled to feel encouraged by the Lord lately to be frank. I’m busy with work and school and a toddler and husband and social life - all blessings. But things that take up my time and leave little to sit with Jesus and ask him to work in my heart. 

I was deeply encouraged by the sermon on a short and simple passage in Romans (15:30-33) at church today. Paul is preparing to take a gift to a Jewish church that was given by a gentile church. He’s asking for prayer that the gift would be received well, that it would build bridges, that it would bring the Jewish people to Jesus’s word. And then he asks for prayer that he would safely reach Rome with joy and be able to take refuge and rest there. 

His request was not met. He didn’t reach peacefully - he reached Rome as a prisoner BUT would later be given opportunities to share the gospel even as a prisoner. Our pastor made a clear statement that when we ask God for something and we get a “no” or a “wait” - God is usually preparing for a better yes that we can’t yet see. 

So I’m saying, we sat and waited and prayed for healing for Jack day after day, and the answer was no. He did not get better. His kidneys did not restart. His heart never pumped on its own. He never came off all the machines alive. 

This was not new info to me today but it is a fact that I will sit with forever. I may never see the better yes or the why behind why God allowed Jack to pass away. But i know we prayed and asked for healing knowing that if it happens, it is God’s will. I believe in a God that loves me enough to send his only Son to die on a cross for my sins, so I could know God and be right with him and be in relationship with him. So I believe that it is all for his good and his glory even when it isn’t clear. I believe that he is completely sovereign and nothing is outside of his control or his will and He is good. Some days I struggle to remember that. But that’s life - we need the gospel preached to us over and over again. 


Comments

Popular posts from this blog

Day 1 - July 12th

    I have desired to write about Jack and our child rearing experiences in general for a while and I frequently push it off and it just simply isn't a "right now" priority. Starting today, on what would have been Jack's 2nd Birthday, I am going to write daily (or try to) for the next 35 days in remembrance of the 35 days he lived on this earth. It will likely be unedited, imperfect, and intentionally raw - partially for the sake of time (I work, do school and we have a toddler in foster care ok?!) and partially because that is the theme of our story, imperfection (made perfect through Christ).  Today, I want to talk about birth. More specifically, medically complex birth. I get asked often if I had to have a mandatory c-section - thankfully no I did not. But I also did not expect to go into labor at 35 weeks and 5 days either and I am certain that is the worse option here. We came home from a week at the lake with Ike's family and as we are getting into bed Ike s

Day 2 - The NICU

 The NICU is a place you are extremely grateful for but you also dread its existence. You are so thankful that your fragile baby has around the clock expert care but you also hate that your baby has to be there without you. And then when you are there you feel awkward - you’re the mother but his caretaker is the nurse - you have to ask permission or for help to hold the baby (so many lines/drains so it’s not easy to pick them up). It’s also just heartbreaking to see the other babies that have been there for weeks or even months. Jack’s isolette/crib/bed was next to a baby born at 24 weeks (on April 8 actually) and it was July 12… he was still tiny with a young mom who we witnessed have hard conversations about her capacity to care for such a tiny fragile baby. The baby on the other side was born via c section because his organs were on the outside of his belly (omphalocele) and he cried and cried and cried. (We actually had a mom bring a baby with this same diagnosis to our house in Ug

Day 6 - ECMO

After all that surgery talk, this seems like an appropriate time to talk about ECMO.  ECMO stands for extracorporal membrane oxygenation - basically an exterior heart and lungs. Only a few hospitals in Virginia have trained teams and adequate machines to run ECMO. We learned a lot about it because there had to be someone in Jacks room 24 hours a day to monitor/run the machine. Like for bathroom breaks or lunch breaks - they had another trained ECMO person come and sit in the room while they took a break. We met almost every ECMO worker (a few didn’t do peds) and we talked with them a ton. They were present for many hard conversations with doctors, surgeons, nurses, chaplains, etc. They did things like get us lunch when the free lunch carts rolled by, bring us honey from home, update us on medical rounds that we missed. They felt like a second family. We wrote down almost all the nurses and ECMO techs Jack had - we wrote down 15 names for ECMO and I know we missed a few (like the night