Skip to main content

Day 14 & 15 - Daddy

 Yesterday we celebrated Ike's 32nd birthday. When we celebrated his 30th birthday, Jack was still here on this earth (at UVA). It makes July a mix of happy and sad emotions for us now.  It was a long but fun day yesterday celebrating Ike so I'll cover two topics in this post: the joys of watching your spouse become a parent and the lows of watching your spouse grieve the loss of your child. 

Ike has always been the dad type. He is a kid magnet, probably because he really is a child at heart and isn't afraid to be a giant goofball. He, historically, is the responsible and considerate one amongst his friend group. He can anticipate other people’s needs and is quick it act on it.

It was my greatest honor and privilege to watch Ike become a Dad. To watch him melt when Jack looked at him. To watch him intuitively know what he needed or how best to do things for him. To watch him read books to him (even when he was in the PICU, sedated/intubated - didn't matter to Ike). To sing to him. To witness him care for me in new and detailed ways. To be our protector with a new sense of urgency, confidence, and pride. 


It has been a joy to watch him be a father figure to the foster children we have had in our home too. It is so natural for him in many ways. He often has more patience and stamina than I do.

Watching my husband grieve was terrible. Experiencing grief yourself is hard. Watching your person grieve is harder. 

In those early days/weeks without Jack, there were many hard days. Days where it was hard to even bring up and crying (both or either of us) was easier. There were days that I felt helpless to ease his sorrows other than to be present. Many days it was hard to even pray together - what does one even pray for in a season like this? I still have days that I struggle to pray - to know what to ask God to work on in me in seasons of grief.  I clung to books that shed any tiny bit of light onto grief (like Holding Onto Hope from Nancy Guthrie and A Grief Observed by CS Lewis) in the early months but Ike didn't want to read (he doesn't like reading in general). I’d tell him about the books, he’d listen but they didn’t interest him. He’s a quiet thinker and doer - he thinks best while doing. 

Some days we could laugh at the stupid or silly things that happened to us during Jack's life and sometimes those moments would end in tears of sorrow. Grief comes in waves - it is not linear and often does not make sense. He was my solid dependable person when I needed him to be during those first few months (and still is that for me.) 

I have no significant advice on how to grieve with your spouse. I am certain there are books out there on it but I haven’t dug for those. I can say that simply being there - in whatever stage of grief they're in (which will likely be different than the one you are in) is essential. Being the solid, dependable person for your loved one is sometimes the only thing you CAN do for your spouse. That and praying for them. 

Lastly, I could not have done any of the last two years alone. We carried each other a lot of days and still do. 

Comments

Popular posts from this blog

Day 1 - July 12th

    I have desired to write about Jack and our child rearing experiences in general for a while and I frequently push it off and it just simply isn't a "right now" priority. Starting today, on what would have been Jack's 2nd Birthday, I am going to write daily (or try to) for the next 35 days in remembrance of the 35 days he lived on this earth. It will likely be unedited, imperfect, and intentionally raw - partially for the sake of time (I work, do school and we have a toddler in foster care ok?!) and partially because that is the theme of our story, imperfection (made perfect through Christ).  Today, I want to talk about birth. More specifically, medically complex birth. I get asked often if I had to have a mandatory c-section - thankfully no I did not. But I also did not expect to go into labor at 35 weeks and 5 days either and I am certain that is the worse option here. We came home from a week at the lake with Ike's family and as we are getting into bed Ike s

Day 2 - The NICU

 The NICU is a place you are extremely grateful for but you also dread its existence. You are so thankful that your fragile baby has around the clock expert care but you also hate that your baby has to be there without you. And then when you are there you feel awkward - you’re the mother but his caretaker is the nurse - you have to ask permission or for help to hold the baby (so many lines/drains so it’s not easy to pick them up). It’s also just heartbreaking to see the other babies that have been there for weeks or even months. Jack’s isolette/crib/bed was next to a baby born at 24 weeks (on April 8 actually) and it was July 12… he was still tiny with a young mom who we witnessed have hard conversations about her capacity to care for such a tiny fragile baby. The baby on the other side was born via c section because his organs were on the outside of his belly (omphalocele) and he cried and cried and cried. (We actually had a mom bring a baby with this same diagnosis to our house in Ug

Day 6 - ECMO

After all that surgery talk, this seems like an appropriate time to talk about ECMO.  ECMO stands for extracorporal membrane oxygenation - basically an exterior heart and lungs. Only a few hospitals in Virginia have trained teams and adequate machines to run ECMO. We learned a lot about it because there had to be someone in Jacks room 24 hours a day to monitor/run the machine. Like for bathroom breaks or lunch breaks - they had another trained ECMO person come and sit in the room while they took a break. We met almost every ECMO worker (a few didn’t do peds) and we talked with them a ton. They were present for many hard conversations with doctors, surgeons, nurses, chaplains, etc. They did things like get us lunch when the free lunch carts rolled by, bring us honey from home, update us on medical rounds that we missed. They felt like a second family. We wrote down almost all the nurses and ECMO techs Jack had - we wrote down 15 names for ECMO and I know we missed a few (like the night